Frequent to Educate Behind a Cancer Diagnosis:
"Back to normal" means "back to school"
for most children who have been treated for a brain or spinal tumor. When your
child returns to school, you want him or she to be treated as normally as
possible and it will take the cooperation of both the school and the health
care professional’s brain cancer working with your child to make this happen...
To make the transition back to school an easy one the teachers and school nurse
should be encouraged to prepare classmates by providing them with information
about the disease and treatment and answering any questions they may have. Let
the teachers and classmates know what to expect and give them an opportunity to
express their concerns and feelings. It is important for teachers to
communicate to other students that brain cancer cannot be caught and that radiation
treatments do not make a child who has them "radioactive." These
types of open conversations may eliminate children's curiosity and make it
easier for them to accept your child back into the class and help them to
accept the differences in their classmates and make them more empathetic and
willing to help. Some medical centers provide an education team consisting of a
child life worker and health care practitioner who can help prepare the class
for your child's return, which in some cases may be helpful.
In
order to make the re-entry into the scholastic environment less abrupt for your
child, the students and the teachers, a slow, transitional approach to
reentering school can be helpful, perhaps only having lunch, attending specific
classes, or going on a field trip with the class prior to a full-time return to
school. It is important to update your child's teachers and the school nurse
with whatever medical information will help them help your child in school. The
more knowledgeable and familiar the teachers are with how your child functions,
the more the classroom environment can be adapted to your child's special needs,
no matter what level of school they may be returning.
Before
your child returns to school, set up a meeting with the teacher, school nurse,
and principal. This meeting will give you an opportunity to discuss any special
requests or concerns you might have. Suggest that the meeting also include
health care professionals such as neuropsychologists familiar with brain tumor
treatments, including surgery, radiation therapy, chemotherapy, and shunts and
give your child's teacher a copy of Cancer vive Teacher's Guide for Kids with
Cancer. You might want to meet or speak with the teacher on a weekly basis to
monitor your child's progress; it might also be helpful to connect with your
other children's teachers as well. Remember to keep an open line of
communication with your child's school. The role the teacher plays is very
significant to your child's developmental adjustment and recovery. The teacher
and/or school nurse must inform you of any communicable diseases, such as
chickenpox, that any class member has contracted. If your child is still in
treatment and has not had chickenpox, exposure to this virus can be dangerous,
and you should contact your physician immediately. (Chickenpox is worrisome
primarily after chemotherapy; doctors rarely worry after radiation therapy.) If
informed, teachers can deal successfully with problems concerning your child's
self-image and relationships with peers as they arise.
Holding
a meeting prior to your child's return to school can be helpful in determining
any accommodations that may be needed to meet your child's special needs. Check
to see if your school has wheelchair accessibility for both the classrooms and
toilet facilities, as special bathroom privileges may be needed. Your child may
need playground or gym exemptions, if he or she is easily fatigued or has
coordination problems. Seating arrangements in the classroom may need to be
adapted if your child has suffered permanent or temporary hearing or visual
impairment. You may want to discuss modifying homework assignments with the
classroom teacher. If your child needs to take medications during the day, it
is very important that you inform the teacher and the school's principal and
nurse what the medications are for and what their side effects may be. All of
these procedures, if reviewed beforehand, will make a child's return to school
much smoother.
The
level of parental involvement wanted by a child varies by age, gender, and
individual personality. It is important to discuss returning to school with
children no matter what age to be sure everyone is on the same page and
children are allowed to have a voice in the involvement of their parents in
their school. For older children, such as those entering high school, autonomy
and a sense of independence is viewed as a necessity for many and for this
reason the teacher-parent relationship is very important, because although
parents may not be wanted by children in their scholastic environment, teachers
have a unique view and can not only watch out for a child but do so in a way that
is not considered intrusive. In this way, parents can stayed updated on their
child's progress without infringing on their child's world that they are more
assuredly desperate to reenter.
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